Login or Sign Up. Logging in Remember me. Log in. Forgot password or user name? Posts Latest Activity Photos. Page of 1. Filtered by:. Previous template Next. I have had one a week for the past 5 weeks, and ever since I started I have had the worst joint pain.
I ache all over, especially the days after the instillations. I have looked up information about this online, but all websites say that it is used to TREAT joint pain, not cause it.
I even went to have my thyroid checked to see if that could be causing it, but everything turned out normal. Have any ideas? Thanks, Caitlin. Tags: None. Daisy Mae. Caitlyn when I read your post I had to look again to make sure I hadn't posted it and forgotten. I have had one DMSO treatment a week for 5 weeks, too! Well, I take that back, I went for one Monday but they wouldn't do it because my culture came back with infection.
As for the side effects of DMSO, yes ma'am! Me too!!! And not only that, I have blurry vision during the course of treatments, and my eyes burn like crazy. This is gonna sound so wierd but the taste and smell you get with DMSO, well, that's what I sense in my eyes. Strange, because I know eyes can't taste or smell but it's a wierd effect that is the same as the taste and smell you get with DMSO. I have a little burning in the vaginal area after DMSO so I have to clean the area really well with those little moist towelettes before I leave the office so that any of the chemicals that leak out won't burn my skin.
It's like acid or something, maybe it's just my imagination but that's what it feels like to me. I get pretty nauseated who wouldn't with the taste and smell of rancid garlic and chemicals?
IC is not curable, although it is often manageable with bladder instillations when combined with other treatments. Other reasons for a bladder wash include:. It is a feeling of pain and pressure in the bladder area. The pain is associated with lower urinary tract symptoms LUTS which have been prolonged for more than six 6 weeks without having any infection or other clear causes. Symptoms may range from severe. Some may feel pain in other areas, in addition to the bladder.
Such areas may include:. Men may also feel the pains in their testicles, or penises, while women may also feel such pains in their vulvas. It is believed that DMSO works by increasing bladder capacity and relaxing pelvic and bladder muscles, and so relax the muscles and effectively ease bladder discomfort or pains.
Potential side effects associated with the DMSO are averagely minimal, but the most common ones are a garlic-like odor that may persist for a few days after washing the bladder with the sulfoxide. Some urologists add other medications like heparin which may ease the damages to the bladder lining to DMSO solutions.
Common bladder installations include the below:. The following above are or can be used as, individual or combined therapies. These procedures carried out while performing the bladder instillation treatment include all of the following mentioned below:. Each patient responds differently to bladder baths. Improvements are often taken notice of within 3 to 4 weeks after the treatment procedures.
Intravesical treatment performed as outpatient in-office procedures or done via self-catheterization at home by the patients themselves are usually done in cycles, usually lasting between the ranges of 6 to 8 eight weeks. If the bladder wash shows proof of being relieved on symptoms, the cycle may have to be repeated once again. A urologist may carry out visual inspections of the bladder between each of the treatments, to look for signs of other problems affecting the urinary system.
The medication was instilled slowly to avoid spasm, and belladonna and opiate suppositories were inserted just prior to treatment in particularly sensitive patients. Treatments were repeated as often as necessary to control symptoms, ranging from weekly intervals in patients with severe symptoms up to periods of three to six months in patients with symptomatic relief.
The treatment protocol varied somewhat in male patients with chronic prostatitis. Here, a Robinson catheter of F was passed gently to the level of the membranous urethra, and the medication was slowly instilled directly into the prostatic urethra and then into the bladder. In some cases the panendoscope was passed under direct vision to the level of the membranous urethra, and the medication instilled through the panendoscope directly into the prostatic fossa. In occasional patients with severe symptoms, this appeared to afford the greatest relief, although admittedly part of the good results could have been psychologic in nature.
In rare patients with extremely sensitive bladders, the first treatments were given under general anesthesia. Patient Categories.
Chronic interstitial cystitis. In females: One hundred women with classic chronic interstitial cystitis, refractory to conventional methods of therapy, were treated by intravesical DMSO. Ages ranged from twenty-three to eighty-one years. All had had progressively severe symptoms or suprapubic pain, frequency, and nocturia despite intermittent hydrodistention under anesthesia, intravesical electrodesiccation or chemofulguration, instillation with various medications, or various types of antispasmotic and analgesic medication.
All patients underwent baseline cystoscopy, with biopsy to rule out carcinoma, and also had pretreatment bladder capacity determinations, urine culture, and cytology studies, as well as routine hematologic and ophthalmologic testing.
Similar baseline studies were performed in the majority of patients with other inflammatory conditions described below. Length of treatment varied from one to eleven years in 79 patients, with the majority receiving ten to twenty treatments over times averaging one to three years. The remaining 21 patients have been under treatment for less than one year and are therefore not included in the statistical review of this series.
In males. Fourteen men, ranging in ages from twenty-eight to seventy-one, were given intermittent intravesical DMSO for the treatment of chronic interstitial cystitis. All had severely progressive bladder pain, frequency and nocturia, and had failed to respond to analgesic, antibacterial, and antispasmodic medication. Many of these patients had not been diagnosed as interstitial cystitis in the past, but instead had been treated for "prostatitis," and 13 of the 14 had undergone previous transurethral prostatectomy without relief of symptoms.
All patients underwent baseline cystoscopy with multiple bladder biopsies, measurement of bladder capacity, and urine culture and cytology determinations to rule out underlying carcinoma.
Treatment with intravesical DMSO was carried out from twelve to forty-five times over a fifteen to thirty-one month period of time in this group.
Several additional patients had been referred to treatment of interstitial cystitis, but were actually found to have carcinoma of the bladder and therefore underwent appropriate operative therapy and are not included in this report.
Radiation cystitis. Twelve patients with radiation cystitis were treated with intravesical DMSO. Most or these patients had previously undergone pelvic irradiaition for treatment of carcinoma of the uterus or cervix, with a few patients receiving therapy for carcinoma of the bladder. None had any evidence of residual bladder carcinoma at the time of DMSO therapy. In all patients severe irritative bladder symptoms had developed several months to several years after radiation therapy, and all had failed to respond to conservative management.
Six to 20 treatments have been administered over an eight to thirty-six-month period. Chronic prostatitis. Thirty-five patients with atypical chronic prostatitis have been treated with intermittent intravesical DMSO. Ages of these patients ranged from thirty-eight to seventy years, with most in their fifties and early sixties. All had suffered chronic perineal discomfort, usually increased following coitus, and in many variable bladder irritative symptoms had also developed. All had undergone transurethral prostatectomy without relief of symptoms.
Two patients had undergone open prostatectomy in lieu of a transurethral procedure. As for frequency, treatments are typically given every few weeks. A urologist can recommend a more specific schedule based on results following each bladder wash. While each patient responds differently to bladder instillations, improvements are often seen within three to four weeks after treatment begins. Treatments performed as outpatient in-office procedures are usually done in cycles lasting six to eight weeks.
If the bladder baths are helping to relieve symptoms, the cycle may be repeated. A urologist might perform visual inspections of the bladder between treatments to look for signs of other problems with the urinary system. Since regular catheter use sometimes increases the risk of urinary tract infections , patients may also be checked for signs of UTIs.
IC sufferers may notice more consistent relief if bladder instillations are combined with lifestyle adjustments. With diet, this means avoiding excessively spicy and acidic foods that tend to irritate the bladder.
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